The HeartOfAGiant Foundation was founded by Somaneh Bouba Diemé, an engineer and entrepreneur from Mali and Senegal.
In 2012, at the age of 26, while living in South Africa, Bouba was diagnosed with a congenital heart condition known as left ventricular non-compaction cardiomyopathy. Since October 2016, Bouba has been on the waiting list for a heart transplant. While he waits for a donor’s heart, he lives with an LVAD Heartmate3 pump, which was implanted in his heart in early 2017.
Following his experience with heart disease, Bouba became intently committed to raising awareness about hypertension and other cardiac conditions, particularly in predominantly BIPOC communities.
As a result, he founded the Heart of a Giant Foundation in 2020 as a nonprofit organisation with a mission to foster healthy outcomes for patients managing chronic heart disease.
During our inaugural year, we developed a partner network of hospitals, health centers, and community development organizations that will deliver care support, education and coaching, and community activities to support disease management and treatment adherence. Our current partners consist of the American Heart Association, Boston Medical Center, Brigham and Women’s Hospital, Wellframe, Meeriad, Community Servings, and other organizations and groups.
Our target population consists primarily of BIPOC and other disadvantaged adults in Dorchester, Mattapan, and nearby areas.
“My goal is to use my lived experience to help eliminate preventable harm and improve the management of chronic health conditions and non-communicable diseases in our communities.”
SOMANEH BOUBA DIEMÉ, FOUNDER AND PRESIDENT, HEART OF A GIANT FOUNDATION