Living with Heart Disease
Welcome to Living with Heart Disease, a Heart of a Giant production. Is it possible to live a longer quality of life after a heart disease diagnosis?
Listen to the patients, support systems, and care providers who have resolved to become healthier both physically and mentally. We share the challenges and the triumphs. Discover what it really means to survive and thrive with a heart condition.
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Amplifying Patient Voices through Unfiltered Conversations with Inspiring Voices.
Living with Heart Disease is recorded LIVE on Zoom bi-weekly. Bouba facilitates unfiltered conversations with inspiring voices from all around the world. Each episode lasts approximately 90 mins. Attendees can also participate and ask questions during the meeting. Besides, the values of positivity, inspiration, and good humor are emphasized!
with Allyson Perron Drag
Come hear the award-winning Allyson Perron Drag share the journey behind the advocacy programs she leads to influence local, state, and national public issues related to Heart Health.
What People Say
Meet Your Host
Somaneh Bouba was an engineer and social entrepreneur from Mali and Senegal when he found himself having to stay in the U.S. with his wife and young son to receive life-saving heart treatment for a rare congenital heart defect. The next year, Bouba underwent open-heart surgery to implant an LVAD pump inside his heart to help his heart function while he waits for a heart transplant. Bouba and his wife, Désirée, now live in Boston, Massachusetts, and in 2018 they welcomed twin boys to their family.
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